How it felt to be nominated:
I was initially uncomfortable with the idea because my illness was something that I had only ever faced privately. I had never wanted it to define me or have people treat me differently.
I realized that through the process of the nomination and then being chosen as the recipient that it could be helpful to others who were experiencing similar difficult health issues to share the profound impact that it has had on me, my life, and everyone around me, and how I have chosen to deal with my illness in the most positive way available to me.
That others would view this as both resilient and brave was not something I had really considered – that was just the way I chose to approach life.
The nomination showed me that resilience and bravery are something to be celebrated and that having the opportunity to shine a light on rare and invisible illnesses like mine is a privilege.
The impact since receiving the award:
Receiving the award gave me the opportunity to share my story and my life with those who had known me for years without me ever discussing my illness in any detail, and to total strangers.
It opened the door to thoughtful conversation regarding my health and my life and allowed me the ability to really explain to those around me what it is like to live in my shoes.
It was not easy but it began a healing journey to better understand my health needs. My hope is still to bring awareness to those that are suffering from diseases like mine and that research worldwide will continue towards helping those, like me, to live a more fulfilling and healthy life.
Why you should nominate yourself or someone:
I really believe that having the opportunity to tell my story was something I had no idea I really needed. It was the first time in my life that I had celebrated the part of myself that I always viewed as my greatest weakness.
The ability to overcome challenges is always something to be celebrated.
Courage is a superpower. I have no doubt that others would benefit from putting themselves or others forward too. It is a gift that others should absolutely experience.
